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Author Topic: how do i know a vns really works?  (Read 4881 times)
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greg
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« on: April 11, 2009, 02:58:54 AM »

my wife and i maybe saw a little change in activity at first but now i know its not helping him at all!! :{
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Dispatch
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« Reply #1 on: April 11, 2009, 07:18:21 AM »

:D HI Greg and  :Welcome: to the board!

It is kinda difficult to respond to your post since you didn't say much, but here's a go at it...

In some patients, VNS works short term per the D-01 pilot study.  In others, it takes considerable time to work, and then there are people who respond quickly.  All-n-all, everyone responds differently to VNS.  If you see that it is no longer beneficial, please contact the doc ASAP to address the issues.

I hope you register to become a member so you can take full advantage of everything the board and all of us have to offer!

Hope to hear from you again soon and take great care!
B)
« Last Edit: April 11, 2009, 07:21:29 AM by Dispatch » Logged

VNS for TRD implant November, 2006.  Complete device removal including coils April, 2008.

"I reckon it's again my turn to win some or learn some..." Jason Mraz

ALL MY POSTINGS ON THE VNS MESSAGE BOARD ARE NON-TRANSFERABLE
Birdbomb
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« Reply #2 on: April 11, 2009, 09:40:21 PM »

:Welcome:  Welcome Greg.  

Glad you found your way from Coping-With-Epilepsy.  If you would be able to give us a few more details, we may be able to give some suggestions.

When was he implanted?  Then how soon was the VNS activated?  What are his current settings?  When did you notice a change?  Is his doctor just insisting on upping the settings, more medications? Any thing else you can add.

This child's settings are very high.  According to Gregs post at CWE he was  started at 2.0!
« Last Edit: April 11, 2009, 09:40:58 PM by Birdbomb » Logged

"If you are going through hell, keep going." (Sir Winston Churchill, 1874-1965)
VNS implanted Sept 02, turned off Dec 04, Generator ex-planted Nov 07
Electrodes are in me for LIFE!
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« Reply #3 on: April 12, 2009, 05:23:14 AM »

Knowing his settings would help alot.
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