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Author Topic: Good day today :)  (Read 6448 times)
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DoulaMomma
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« on: June 05, 2008, 08:43:09 AM »

The nurse from Cyberonics came to Bo's school today to explain the procedure, answer any questions and help them feel more comfortable with it. There were 9 people from his school that attended. It was nice to see that kind of support.

I also got 2 magnets AND the patient manual  :D

Karen
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Dispatch
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« Reply #1 on: June 05, 2008, 08:57:04 AM »

HI There!

So glad the day was good and informative!  Wow!...you got a manual before implant?  That is just fantastic!  So, have you decided about Bo having the surgery?  Please read, read, read, and then come back here and read more and more.  And don't forget to ask millions and gazillions of questions!

Hope all is well!

Dispatch  B)    
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Birdbomb
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« Reply #2 on: June 05, 2008, 10:28:51 AM »

Now THAT is a FIRST before surgery!

Maybe you can teach an old dog new tricks!  ;)
« Last Edit: June 05, 2008, 04:52:56 PM by Birdbomb » Logged

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« Reply #3 on: June 05, 2008, 12:59:38 PM »

That is a FIRST!!!!!!!!
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DoulaMomma
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« Reply #4 on: June 05, 2008, 02:22:41 PM »

Hey! I wouldn't have even asked for the manual if it weren't for you guys!  :Thanx: I will read the manual this weekend, since school ends tomorrow!  : party1 :

Karen
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« Reply #5 on: June 06, 2008, 01:25:09 AM »

Please don't forget we are here for guideance!  There are bunches of us with direct experience with VNS and we are glad to help!  :D

Dispatch  B)  
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VNS for TRD implant November, 2006.  Complete device removal including coils April, 2008.

"I reckon it's again my turn to win some or learn some..." Jason Mraz

ALL MY POSTINGS ON THE VNS MESSAGE BOARD ARE NON-TRANSFERABLE
gel61820
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« Reply #6 on: June 07, 2008, 03:11:59 PM »

This is fantastic news to hear that you not only got the manual BEFORE surgery but also that someone from Cyberonics went to the school to explain this procedure and how it works to Bo's teachers, counselors, etc.  

Please keep us informed on your decision.  My prayers are with you through this process as I know how difficult it was for me to decide for myself, but to make that decision for a child adds that much more stress.  

Hugs,
Cindy
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VNS implanted July 2007 for Epilepsy.  Activated August 2007.  No success, so VNS was turned off in August 2008 and COMPLETELY removed (including coils) on Nov 25, 2008.
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« Reply #7 on: June 08, 2008, 11:07:16 AM »

Hi Karen,

Just wanted to add my support to all those who have already posted.

You're in my thoughts as you make this important decision.   :)

 
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