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scottish mum
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« on: March 26, 2008, 09:45:42 AM »

Hi
Wondering if anyone can advise. My daughter was given the vns in January this year and is at .5 at the moment. She seems to have had a lot of seizures since putting it up to this. She is also at this time studying for exams at college. Did anyone find that the vns made seizures worse at the beginning or is it probably just stress of exams. If anyone can help would be very grateful. : newbie :  
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Petunia
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« Reply #1 on: March 27, 2008, 03:48:20 AM »

Hello,
Yes my VNS made me have more seizures not less, I had to turn mine off
and have had it removed.  
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Complex Partical seizures since age 12. Right lobectomy in 1992, VNS Feb. 2003, removed Feb. 2004. I'll just keep trying.
Birdbomb
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« Reply #2 on: March 27, 2008, 05:34:06 AM »

VNS CAN and often does increase seizure activity.

Sometimes shutting it off for a few months and they trying again helps.  But for some, nothing can be done, the VNS is not compatable for everyone.  

Unfortunately there is no way of predicting who will have more seizures or less untill the VNS is implanted and activated.
« Last Edit: March 27, 2008, 05:34:28 AM by Birdbomb » Logged

"If you are going through hell, keep going." (Sir Winston Churchill, 1874-1965)
VNS implanted Sept 02, turned off Dec 04, Generator ex-planted Nov 07
Electrodes are in me for LIFE!
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« Reply #3 on: March 27, 2008, 06:45:55 AM »

Hello scottish mom!

I just heard a couple of months ago the same question from a mom over here in Holland.
Her daughter (13) had also more seizures in the beginning. Sometimes it happens.
But later on she had less seizures. It is very difficult to say what and when the vns will do for someone. And sometimes you have to be in a lot of patience.
But you have to tell her doctor about this! Maybe he can change something.

I hope that the seizures will become less for her too, and that vns will be something good for her. Like it is for my son.

Sincerely,
 
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Life isn`t how to survive the storm,but how to dance in the rain!


Nino`s Mom, from Holland.
 Mom of a 16 years old son, vns since 2002.
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