Olivia has severe learning disabilities along with challenging behaviour, hypotonia, Autism and auditory processing disorder. She went through a battery of tests from the age of 9 months as she was very delayed in reaching her 'milestones'. One of the tests was a chromosome test, which coincidently was the only one that came back abnormal. It wasnt until 2 years ago that any of her EEG's showed any seizure activity even though right from birth she had what seemed like breath holding. Over the years the whole range of seizures have manifested themselves. The first EEG to show anything up showed right temporal activity and then 6 months later another one was done and it showed seizure activity firing from all over the place!
Olivia has the body of a young lady but the mental age of a preschooler. We are lucky in some respects that she doesnt know she is any different from anyone else...in fact there are times when she doesnt even know she is Olivia and is convinced she is Scooby Doo, Pikachu and various other characters in her head! She cannot tell us that she is about to have a seizure, or in fact that she has had one, so if they are missed by anyone, it is usually the post seizure behaviours that are witnessed.
You can read about her chromosome disorder at www.idic15.org
and her behavioural disorder at www.pdacontact.org.uk
She is a very complex young lady with very complex needs. The reason I chose to show you this particular picture is because she very rarely smiles like this, let alone look in the direction of the camera!
Looking forward to learning more about you all,