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Author Topic: Medicare DENIES COVERAGE  (Read 35449 times)
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labrat
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« Reply #30 on: November 23, 2007, 08:34:07 AM »

Preach on sister! Amen.
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dreambeliever128
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« Reply #31 on: December 21, 2007, 02:52:11 AM »

Hi,
I just started posting to the board last week but I wanted to say that my VNS was approved by Medicaid.

Mine is off right now and it may never be turned back on. My feelings are though that everyone should have the choice of wheather they have the VNS or not.

I also wanted to say that mine was approved by Medicaid in Co. on the first try.  My PCP had taken care of me for 17 years and has councelled me for 8 so he wrote a letter to help me get it.

I am thinking that if there is enough evidence to prove that a person has done all the can to help their depression and nothing has worked then Medicare may approve it.

I can't take depression meds at all. I have tried most all of them and been sick from all of them, I had seen two Physchitrist that wanted to do ECT treatments on me and I refused them. I feel we did everything we did to get my depression under control before the VNS.

As I said, I am not sure mine will ever be turned back on but I believe it should be a choice of the patient.

Ada
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MissJennie
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« Reply #32 on: August 30, 2009, 09:22:02 AM »

I am sooooooooo upset. I fell soooooooooo stupid.

Before I knew the truth about my VNS, I really thought it was going to save my life!!!

So, I posted my history on the Medicare web site defending payment for the VNS.

I did a google search for my name the other day, and THERE WAS MY HISTORY.

Does anyone know what I can do. I don't want my family or grand child to see that stuff.

I thought the only people that would see it is people on the Medicare web site, people like my self, suffering!!!


I AM SOOOOOOOOOOO WORRIED.

 :So Sad:  
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Birdbomb
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« Reply #33 on: August 30, 2009, 05:57:30 PM »

Contact the site administrator and asked that your information be removed or edited.  Word of advice, avoid using your real name on the internet.  You just never know where it will end up. Please check your PM's
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"If you are going through hell, keep going." (Sir Winston Churchill, 1874-1965)
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« Reply #34 on: August 30, 2009, 09:29:55 PM »

:D HI MissJennie!

It is so great to hear from you.  I'm awfully sorry to hear you are under this amount of stress.  I hope you can get some resolve to this very soon.

I agree with what Birdbomb said about contacting the site administrator to see what kind of assistance they can give you.  If they say they can't help you for some odd reason, check and see if you are able to make another post.  If so, consider retracting your original post, and tell what has happened to you with VNS.

In another siuation I was in unrelated to VNS, my story was plastered all over the net and I fortunately didn't use my name.  I ended up contacting a senior moderator explaining why I wanted the whole thread and replies deleted, and it was done.  Now you can't find it anywhere on the net.  I am so grateful!

Please do visit again and give us an update about how you are doing and what happened in this situation.

Take care!
B)
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ALL MY POSTINGS ON THE VNS MESSAGE BOARD ARE NON-TRANSFERABLE
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« Reply #35 on: September 01, 2009, 12:48:43 PM »

Birdbomb,

This is driving me crazy!!!!!!!!!!!! I can't even think straight!!!!!!

I went to look and see if the google search was still there (after sending a email to
medicare) and I noticed it is posted BY THAT MAN, LINKED TO MEDICARE.

OH MY, WHAT AM I TO DO?????????

I TRIED TO GO TO HIS SITE, AND IT KEEPS TIMING OUT ON ME. (ONLY HIS SITE???)
I TRIED TO CLICK ON THE GOOGLE SEARCH AND IT KEEPS TIMING OUT.

SO IT WASN'T MEDICARE THAT POSTED IT, IT WAS HIM.

MY NERVES ARE SHOT!!!!!!!!!! :Tantrum:  
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« Reply #36 on: September 01, 2009, 09:47:10 PM »

:D HIMissJennie!

OK-in the email to Medicare, did you mention this mans name?  If not, do another email to Medicare and tell them he is the one who posted this, and ask if they have contact info for him.

Keep googling his name and see if you can bring him up.  It may be timing out if his site is down.  Then, when you finally get thru and can contact him, if this were me, I would give him a : rocket : for puting something on the net without your permission.  He could've at the very least removed your name.

Please hang in there, and please do keep us updated.  Until then, please try and take good care!

B)  
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VNS for TRD implant November, 2006.  Complete device removal including coils April, 2008.

"I reckon it's again my turn to win some or learn some..." Jason Mraz

ALL MY POSTINGS ON THE VNS MESSAGE BOARD ARE NON-TRANSFERABLE
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« Reply #37 on: September 02, 2009, 03:36:53 AM »

I opened his web site this morning. I tried to join, so I could ask him to remove it.
I had trouble joining??? This is really getting to me!!

There was an email to the administrator on his site, so I sent an email there, begging him to remove my personal information.

I did not give any name in my email to Medicare, I sent them a copy of the http address I had found my information on.

Medicare has not replied yet.

It really hurts my heart, ALL I WAS TRYING TO DO WAS HELP OTHERS. I WILL NOT DO THAT AGAIN!!!

Thanks for your support, I need it!!



 :So Sad:  
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« Reply #38 on: September 02, 2009, 03:55:48 AM »

I sent Medicare another email, with all the information, his name etc.

I have asked for a reply, or even another email address I could use to get some help.

 :Tantrum:  
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« Reply #39 on: September 03, 2009, 08:27:01 PM »

:D HI MissJennie!

Sounds like you've taken some great steps to get this resolved.  Please do keep us updated on what's happening.

Take good care and hope inspite of this you are doing alrighty!
B)
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VNS for TRD implant November, 2006.  Complete device removal including coils April, 2008.

"I reckon it's again my turn to win some or learn some..." Jason Mraz

ALL MY POSTINGS ON THE VNS MESSAGE BOARD ARE NON-TRANSFERABLE
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« Reply #40 on: September 05, 2009, 09:05:40 AM »

I still have not had a reply from that MAN, that posted my information.

I even went to his site and tried to join, so I could get in touch with him, but
I can't log in. It doesn't look like he has been on the site in a few months.
He hasn't been on his MY Space page for a while either.

I have called Medicare. They are investigating, and they said they would call me back.

I will keep you all posted.

I just pray I get this off line soon.

 :Really Mad:  
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« Reply #41 on: September 05, 2009, 09:25:29 PM »

Quote
I just pray I get this off line soon.

 
 :Yeah That:

Thinkin' 'bout ya.  Take care!
B)
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VNS for TRD implant November, 2006.  Complete device removal including coils April, 2008.

"I reckon it's again my turn to win some or learn some..." Jason Mraz

ALL MY POSTINGS ON THE VNS MESSAGE BOARD ARE NON-TRANSFERABLE
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« Reply #42 on: September 06, 2009, 05:37:59 AM »

Hi Miss Jennie,

I've been gone for a long time due to family health problems.

I'm sorry you have to deal with this problem when you were trying to be helpful and compassionate.

You know, eventually you will get it worked out.  Please try your best not to let it upset you.

Thinking of you and hoping all will go well!   Oreo
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MissJennie
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« Reply #43 on: September 09, 2009, 08:56:54 AM »

Thanks to everyone for you kind words.

I still haven't heard from that MAN, and I still can't get onto his web site.

Medicare called, and said I needed to keep sending them emails and sending my responses to the web page that my information is posted, until someone takes notice and replies.

They said there was a "respond" area on the web page my information is posted.
I told the lady I did that, and also emailed the contact for the web page.

Anyway, I looked today, through the Google Search, and I can't find the link anymore.

I don't know if it is gone, or it just didn't come up on the first several pages of the Google search. ( I know the searches are not the same order, from day to day)

I will keep checking, but I pray it is gone.

Thanks for being there for me!!



 
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