
I kinda cringed when I saw the pics of my VNS removal scars on KXAN with the tacky tattoo. LOL!

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1
on: September 01, 2010, 02:35:37 AM
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| Started by suspender - Last post by Dispatch | ||
![]() I kinda cringed when I saw the pics of my VNS removal scars on KXAN with the tacky tattoo. LOL! ![]() |
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2
on: August 31, 2010, 03:56:42 AM
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| Started by suspender - Last post by Birdbomb | ||
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I have another one on my chest. Got it back in 1985, before it became popular. It's my own design but has faded and needs to be redone.
There are some people who do tattoo their medical information and I guess it works out fine for them. I think if I did that it would become a full body work! LOL |
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3
on: August 31, 2010, 03:33:02 AM
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| Started by suspender - Last post by Dispatch | ||
![]() I love fact based posts!!! Suspender--I am really happy to hear you've had some success with VNS--it's always great to hear things like this! Sorry to know you got to be part of CYBX regular routine. (: ![]() |
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4
on: August 31, 2010, 03:30:24 AM
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| Started by Birdbomb - Last post by Dispatch | ||
![]() Let's all hope the Digest's article kicked the ball into motion...stay tuned more to come I'm sure. Take care! ![]() |
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5
on: August 31, 2010, 03:29:02 AM
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| Started by suspender - Last post by Dispatch | ||
![]() COOL tats---mine is tacky so I don't like to show it off. ![]() |
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6
on: August 29, 2010, 06:07:46 PM
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| Started by suspender - Last post by Birdbomb | ||
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Am I allowed to say how in the hedoublell pitchforks? As before, my vns lets me live out of the fog. But it does not completely stop or reduce the severity of my seizures all of the time. After every adjustment to my vns I set in my docs office for 20 minutes to see how I will tolerate the new setting. I ALWAYS tolerate the adjustment fine. It's the 2 or 3 hours later that the problem begins and becomes worse over the next few days. The muscle spams, choking, hoarseness and unable to catch my breath start and become worse and I tolerate it. But since my seizures have become a little bit worse the setting is now at 2.00 ma for 30 seconds every 2 minutes. Actually this is a low setting, younger people can tolerate a much higher setting. I am definitely not a younger person I just haven't grown up yet. These engineers and doctors of cyberonics are suppose to be educated and ethical and do understand that every person taking a medication or a medical implant device will react differently and that we are not cookie cutter duplicates. I knew when I decided to get the vns it was no cure-all. The success rate was like a bell curve. The younger you were the better chance of success. If I could ever find the words to clearly and truly paint a picture of the fog I lived in before my vns then others would understand. My vns does not control my seizures but I stay out of the fog and because of that my vns is my friend. BUT cyberonics lied with partial truths, lies by omission, and misinformation and just plain not releasing or giving out information at the time they learned of performance and safety issues. Thank you I'll get off my soap box now. And good night.![]() |
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7
on: August 29, 2010, 05:49:41 PM
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| Started by suspender - Last post by Birdbomb | ||
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That hideous thing is not my tat! ROFLMAO Here's mine, but it's still a work in progress. It's in memory of my best friend who died in his sleep last year. We are big sushi fans and were suppose to go out for lunch at one of our favorite haunts the day he died. I've just had too many medical issues to get any more work on it.
But I say one thing, this tattoo gets NOTICED, I guess because of the subject matter. You don't see sushi tats very often. ![]() |
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8
on: August 29, 2010, 05:44:44 PM
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| Started by suspender - Last post by suspender | ||
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Am I allowed to say how in the hedoublell pitchforks? As before, my vns lets me live out of the fog. But it does not completely stop or reduce the severity of my seizures all of the time. After every adjustment to my vns I set in my docs office for 20 minutes to see how I will tolerate the new setting. I ALWAYS tolerate the adjustment fine. It's the 2 or 3 hours later that the problem begins and becomes worse over the next few days. The muscle spams, choking, hoarseness and unable to catch my breath start and become worse and I tolerate it.
But since my seizures have become a little bit worse the setting is now at 2.00 ma for 30 seconds every 2 minutes. Actually this is a low setting, younger people can tolerate a much higher setting. I am definitely not a younger person I just haven't grown up yet. These engineers and doctors of cyberonics are suppose to be educated and ethical and do understand that every person taking a medication or a medical implant device will react differently and that we are not cookie cutter duplicates. I knew when I decided to get the vns it was no cure-all. The success rate was like a bell curve. The younger you were the better chance of success. If I could ever find the words to clearly and truly paint a picture of the fog I lived in before my vns then others would understand. My vns does not control my seizures but I stay out of the fog and because of that my vns is my friend. BUT cyberonics lied with partial truths, lies by omission, and misinformation and just plain not releasing or giving out information at the time they learned of performance and safety issues. Thank you I'll get off my soap box now. And good night. |
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9
on: August 29, 2010, 03:57:58 PM
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| Started by suspender - Last post by suspender | ||
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Birdbomb!! Wow, hmmm. If I had my vns removed I would have my tatoo covered over. My tat is on my chest and it is not out there were the public sees it and would ask questions. My vns is not a perfect answer to my sz's, but I can always have it turned off and left in. Be good to yourself.
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10
on: August 28, 2010, 05:20:25 AM
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| Started by dennis100 - Last post by NancyB | ||
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If the vns is functioning exactly how it was designed to, then how in heck did it get an approval to treat seizures? Was it designed to increase seizures? Was it designed to increase depression? Was it designed to cause death or to manipulate through the body or shock the patient or cause the heart to stop?
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